Hey everybody, it's me! Having siblings with Down syndrome isn't that much different from having "normal" siblings. It's hard to describe what it's like because in my opinion and experience, to really understand what it's like you need to experience life with them and all of their quirks. They've definitely changed my life in the way of my career goals. Because of all of the things I have seen my siblings do, I want to help other children with special needs be able to do all of those things and more. I also want to have or adopt a child with Down syndrome. Preferably a girl because girls are just so much more fun to shop for. At least to me they are because I am a sucker for ruffles and quite frankly, I don't think a little boy would enjoy wearing a ruffled shirt :)
With four siblings who have Down syndrome I have learned that words aren't the only way of talking. My siblings communicate with us in so many ways, with sign language, their eyes, and the far less preferable way, crying and screaming. The occasional raspberry (courtesy of Carrington) gets our attention as well :)
I would definitely say the hardest part about having siblings with Down syndrome is all of the doctor appointments and hospital visits. Always running all over the place trying to get to each appointment on time... it gets stressful sometimes. But the love and trust my siblings have for me, that is the best part of any and all days that I spend with them.


3 comments:
Thanks Madelaine. You are wise beyond your years. I think you are already such a wonderful young lady, and meeting you and your family was an absolutely overwhelming and awesome experience (met yall at conference). And just an FYI, I was just preaching the whole "communication comes in more ways than actual speaking" today, and I absolutely agree that dressing girls is way easier and way more fun. :-)
Thanks for sharing Madelaine! I am a sibling myself so its good to hear your perspective on it!
That was a great post from a new perspective. Madelaine sounds like a very mature, helpful big sis'. Every child deserves one (or more) of those!!
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